The Deb Bailey Foundation Inc for Motor Neurone Disease was set up to raise money for medical research into a cure for motor neurone disease (MND), a debilitating and presently incurable disease that affects the nervous system.
The Foundation also acts as a lobby group to persuade governments to allocate funds and other support for researchers in their quest to conquer neurological diseases such as MND.
The Deb Bailey Foundation Inc was named in memory of Deb Bailey, a successful and energetic Sydney journalist who died suffering from MND. Deb believed that if a task was important, you ignored its difficulty and devoted all your energy to its accomplishment.
While MND presently remains unconquered, several encouraging breakthroughs have happened recently. Researchers believe that finding an MND cure will go hand in hand with the cure for a whole range of neurological diseases including Parkinson's and Multiple Sclerosis.
Professor Stephen Hawking, an eminent British scientist who is also a rare long-term survivor of MND, once said that MND doesn’t get the attention it deserves because it often kills its victims in two or three years, and they aren’t around to be noticed.
The Deb Bailey Foundation aims to combine the voices of the many MND people, their families, friends and supporters, into a loud and clear voice to politicians and bureaucrats.
Together we can change the course of this disease.