In February 2000 I noticed some weakness in my left arm and my speech was slurring. By April 2000 I had a definite diagnosis of motor neurone disease. It happened that quickly and I was absolutely terrified. My world was shattered. My marriage collapsed as I became progressively disabled. I couldn't physically care for my children or myself anymore, and spiralled into deep depression. I'm now a single, disabled parent who is totally dependant on carers for everything. I never expected my life to change so tragically and it took me years to see anything positive about my situation.

BUT, I pulled myself up from rock bottom and if I could do it then I believe that anyone can. The first step was to start attending my local hospice in April 2001. I attend their gym twice a week and believe that my MND has stopped progressing. Time will tell if I am correct......

I started writing my story next using a program called E Z Keys with a chin switch (not finished yet!) I have had articles published, given presentations to health professionals, made two films, participated in several photo shoots and this website! I am the Sarah in 'Sarah''s Story' which is the [UK] MNDA's new campaign to raise awareness of MND. Approximately 5,000 people have this devastating illness in the UK and 5 people die from it every day. My aim is to continue to raise awareness of MND until a cure is found.